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Association Profile
   
The Israeli Association for Gaucher was founded in 1991 by a few patients and their family members with the recognition and support of Dr. Ari Zimran from the Sha'arey Tzedek Medical Center in Jerusalem.

Dorit Levi, Yael's (a Gaucher patient) mother has led the association from its early days. The main goal set by the association was to make accessible the enzyme treatment that is on the market today, but was out of reach for so many patients.

The intensive work done by the association and its public/media relations, led to Gaucher being recognized as one of five major illnesses that are covered by the State of Israel's national medical statute in 1995. This action allowed every Gaucher patient to receive medical treatment if they required it.

In clause 21 of the above medical law it states "treatment for Gaucher" (as agreed by a professional medical committee) as part of the medical service that is provided to the citizens of the state of Israel.

Duties:
Chairman –
Gil Faran.  
Association Secretary – Tzvika Artan
Head of friend relations and medical company relations – 
Deddi Ohana.  
leagal advisor-   
Dorit Levi Tayler Adv. 
Head of finance and relations abroad – Yossi Cohen . 
Head of Audit commite – Dolli
Head of the association's magazine (Gaucherton) – Raul & Nita Asif. 
Head of functions and events – Yael Adini.
Head of Internet Website – Gil Barda.
other members- yoram miller , sivan goldberg

  
Association Goals: 
To provide assistance for Gaucher patients (both individuals and groups).
To represent Gaucher patients.
To provide valid information for Gaucher patients and their family members.
To distribute information about the illness to institutions, health professionals, etc.
To provide a support center, in order to unite patients and their family members.
To support the study and research of Gaucher disease.
To communicate with other associations worldwide in order to provide the most accurate and relevant information for Gaucher patients in Israel.

Association Activities: 
Yearly Gaucher patients' conference.
Distribution of the Gaucher magazine (Gaucherton).
Support and consultation via the phone.
Publicity, targeting caregivers and pharmacists – lectures and information.
Member and lead promoter of E.G.A – the European unity for Gaucher patients.
A project for home treatments in association with Genzyme.
Activities for association members aimed at improving patient's quality of life.
Distribution of current information via the association's website. 
 
 Adress
Israel Gauchers Association
P.o.b:33814 
 zip code:31338
Haifa 
Israel
Phone/Fax: -972-4-9504403

 
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